Raising Mikah: Our Journey with a 14q Deletion: Moving Forward

Tuesday, January 13, 2009

Moving Forward

Here is a video I just shot of Mikah moving down his ramp. I hope it comes out okay as our camera wasn't really made for videos...

Here are some other of my favorite recent pictures.

Cuddle time!

Ellie's new guitar

Look at me!

Too cute!!!

Our precious boy.

2 comments:

The Sanchez Family said...: Oh my gosh!!! He is doing GREAT!!!! Keep up the good work Michelle and Mikah!!!! Awesome, awesome, awesome!; January 13, 2009 at 3:47 PM
sunette said...: Hallo Michelle and Mikah

I get goosebumps just seeing you working so hard and doing so well!! Good Job!; January 13, 2009 at 11:31 PM

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THE SPECIAL MOTHER by Erma Bombeck

Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit.

This year, nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen?

Somehow, I visualize God hovering over Earth selecting His instruments for propagation with great care and deliberation. As He observes, he instructs His angels to make notes in a giant ledger.

"Armstrong, Beth: son. Patron saint, Matthew. Forest, Marjorie: daughter; patron saint Cecilia.

"Rutledge, Carrie: twins. Patron saint....give her Gerard. He's used to profanity.

"Finally, He passes a name to an angel and smiles. "Give her a handicapped child.

"The angel is curious. "Why this one, God? She's so happy."

"Exactly," says God. "Could I give a child with a handicap to a mother who does not know laughter? That would be cruel."

"But does she have patience?" asks the angel.

"I don't want her to have too much patience, or she will drown in a sea of self-pity and despair. Once the shock and resentment wear off, she'll handle it."

"But Lord, I don't think she even believes in you."

God smiles. "No matter, I can fix that. This one is perfect. She has just enough selfishness."

The angel gasps. "Selfishness? Is that a virtue?"

God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn't realize it yet, but she is to be envied."

"She will never take for granted a spoken word. She will never consider a step ordinary. When her child says 'Momma' for the first time, she will be witness to a miracle and know it! When she describes a tree or a sunset to her blind child, she will see it as few people ever see my creations."

"I will permit her to see clearly the things I see- ignorance, cruelty, prejudice- and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life because she is doing my work as surely as she is here by my side."

"And what about her patron saint?" asks the angel, his pen poised in mid-air.

God smiles. "A mirror will suffice."